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Endometriosis and Back Pain: A Symptom Often Overlooked

PH
Patricia Hackshaw
||6 min read

When most people think of endometriosis, they think of pelvic pain and bad periods. But can I tell you about a symptom that nearly BROKE me before I even knew what was causing it? Endometriosis back pain. That deep, aching, relentless pain in my lower back that no one — and I mean NO ONE — connected to my endo for years. I went to chiropractors. I tried massage therapy. I thought I had a spinal problem. Turns out, it was endometriosis the entire time.

How would you feel if you spent years treating the wrong thing? That's exactly what happened to me, and it's happening to thousands of women right now who have no idea their back pain is linked to this disease.

Why Endometriosis Back Pain Happens

Let me explain why endometriosis causes back pain, because once you understand the mechanics, it makes so much sense:

  • Endometrial implants on pelvic ligaments: The uterosacral ligaments connect your uterus to your sacrum — the base of your spine. When endometrial tissue grows on these ligaments, it causes direct pain that radiates to your lower back. This is one of the most common locations for endo implants, and it's a MAJOR source of back pain.
  • Inflammation: Endometriosis causes chronic inflammation in the pelvic area. That inflammation doesn't stay contained — it spreads to surrounding areas, including the muscles and nerves in your lower back.
  • Adhesions and scar tissue: After 8 surgeries, I have adhesions pulling on structures throughout my pelvis and abdomen. These adhesions create tension and pulling sensations that directly cause back pain.
  • Nerve involvement: In some cases, endometrial implants can affect nerves in the pelvic region, causing referred pain in the back, hips, and even down the legs.

When I was diagnosed in 2011 in St. Croix, USVI, my doctor found implants on my uterosacral ligaments. Suddenly, YEARS of unexplained back pain made sense. I literally sat there and cried — not from sadness, but from RELIEF that I finally had an answer.

How Endometriosis Back Pain Affected My Daily Life

Do you know what it's like to wake up every morning with your back screaming at you? To not be able to sit at a desk for more than 30 minutes without shifting and squirming? To have people tell you "Just stretch more" or "You probably slept wrong"? I do. I lived that life for YEARS.

The back pain from endometriosis isn't like the soreness you get from overdoing it at the gym. It's a deep, gnawing ache that sits in your lower back and sometimes wraps around to your hips. For me, it was worst during my period, but it could show up ANY time. Some days I could barely bend over to tie my shoes. Some days I was in tears just trying to get comfortable enough to fall asleep.

And the most frustrating part? Because back pain is so COMMON, nobody suspected endometriosis. I was given muscle relaxers. I was told to lose weight. I was sent to physical therapy. All of those things might help general back pain, but they don't address the ROOT CAUSE when that cause is endo tissue growing where it shouldn't be.

What to Do About Endometriosis Back Pain

If you have endometriosis and you're dealing with chronic lower back pain, here's my advice:

  • Tell your endo specialist. Don't just mention it to your primary care doctor and accept a generic diagnosis. Make sure your gynecologist or endo specialist knows about the back pain specifically.
  • Heat therapy: A heating pad on my lower back has been my best friend. Seriously — I own about five of them at this point.
  • Gentle stretching and movement: Yoga poses that open the hips and stretch the lower back have helped me. Nothing aggressive — just gentle, intentional movement.
  • Anti-inflammatory approaches: Whether through diet, supplements, or medication, reducing inflammation in your body can help manage the pain.
  • Track it: Keep a pain diary. Note when the back pain is worst, what you were doing, where you are in your cycle. This information is GOLD for your doctor.

Don't let Endometriosis win!!! If you've been told your back pain is "just muscle tension" but deep down you know it's more — trust yourself. Push for answers. You are not imagining this.

Are you dealing with back pain and endometriosis? Reach out to us and share your experience. The more we talk about these overlooked symptoms, the faster women get diagnosed. 💛

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